The Christensen Chronicles

Friday, January 20, 2012

We knew it was coming

Every 2-3 weeks Jordan has had to go to the cardiologist and it's become pretty routine for us. We go in, she gets an EKG done, a weight check, chat with her doc for a bit then in for an echo, everything stays the same and we go home only to do it all over again a few weeks later. Until today. Dr. Park's exam of Jordan revealed that her murmur was VERY loud, we could tell by his face and the fact that he kept listening to her chest that something was up. We went to the echo. room where the tech didn't talk to us while doing the sono which is unusual. After she was done we went back to our exam room for like 5 mins and then Dr. Park told us to go back to the echo room b/c he wanted to double check something, uh oh. Turns out the reason Jordan's murmur is so loud is b/c she is having a complication due to her VSD. The different pressures and stuff have caused the entire left side of her heart to be enlarged and her right ventricle now has "muscle bands". These bands essentially form on the inside of the ventricle and squeeze it making it appear as though it is a Double chamber. A Double Chamber Right Ventricle, DCRV, isn't very good. We now have to set a surgery date for our sweet baby girl. We knew it was coming and part of me is glad that we now know it's going to be sooner rather then later but it's very difficult to think of my not even 11lb baby having surgery.  Dr. Park is fantastic and had no issue when we told him we wanted the surgery done at Children's instead of with his surgeons.  Because of it being cold and flu season we were advised to try and schedule it for mid March to beginning of April to lesson the risk of Jordan getting sick, fair enough. Peter and I had already researched and decided that Children's Hospital would be the best place for when this time came but I am pretty intimated by how huge it is and I just really hope it's not too hard to get scheduled. Man this just sucks...

1 comment:

  1. Hey Lindsey I'm sorry to hear that things have not gotten better, but I'm super happy that you have a wonderful doctor who I am sure will take the best care of your littlest angel.

    Love Sherry

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